The nonprofit RARE-X is creating an easily-accessible, centralized data hub for all rare disease patient data that can help researchers answer questions about existing disorders, discover new ones, and work toward finding treatments. It was spun out of the work that Nicole Boice, founder and chief engagement officer of RARE-X, did with Global Genes. That organization supports those affected by rare diseases through community-building and educational resources. Nicole Boice. (Photo courtesy of RARE-X.) Boice, who…
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