The National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues in a nod to its increased use during the ongoing COVID-19 pandemic. NORD’s report card project began seven years ago with the goal of evaluating how well each state serves patients with rare diseases. But the organization’s latest edition, which takes policy data from November…
April 15, 2022April 15, 2022